Patient Stories

Living with Acromegaly

"Without missing a beat, my doctor retorted, “Boy Jill, it sure sounds like rheumatoid arthritis or acromegaly to me. “What’s acromegaly?” I asked. Little did I know that question would be answered and revealed to me in every aspect of my adult life from that day forward."

Getting Past It

"Denial of symptoms prior to diagnosis, not getting in pictures, sleep apnea, tight shirts, swollen hands and feet. Supposedly, Liz, Myron’s nurse, told me I looked Acromegalic and I shined her on. I just don’t remember her saying anything, or maybe, I just wasn’t listening. Many people are now saying, “Oh, sure, I knew he had it, or something was wrong, but they did not say anything to me.” My best friend, Larry, had his textbook open to the page on Acromegaly for months, but was afraid to say anything because he feared hurting my feelings."